by charmnicole | Jan 7, 2022 | Uncategorized
Newswise — New Brunswick, N.J., December 1, 2021 – The survival rates of adolescent and young adults with cancer have risen dramatically due to advancements in cancer therapies. However, this population is at higher risk of developing treatment-related chronic illnesses, including cardiovascular disease, obesity, secondary cancers and psychosocial issues that may be disruptive to social development. There is a growing consensus that adopting and maintaining a healthy lifestyle including physical activity can help mitigate some of these detrimental effects.
Katie Devine, PhD, MPH, is section chief of Pediatric Population Science, Outcomes, and Disparities Research in the Division of Pediatric Hematology/Oncology at Rutgers Cancer Institute of New Jersey, the state’s only NCI-designated Comprehensive Cancer Center together with RWJBarnabas Health, and associate professor of Pediatrics at Rutgers Robert Wood Johnson Medical School. Her research focuses on psychosocial aspects of pediatric, adolescent, and young adult cancer survivorship, including survivorship care and health promotion for survivors. She shares insight on this topic.
Source: Childhood Cancer Survivors and Physical Activity
by charmnicole | Jan 7, 2022 | Uncategorized
In 2009, Chrisie Funari’s daughter Ava was diagnosed with stage-four cancer at 18 months old. The diagnosis changed her life overnight.
Funari traveled the country seeking the best treatment. She lost her car, had no job and moved in with her parents to care for Ava. Still, Ava lost her battle to cancer in 2012 at age 5.
Funari was eight months pregnant at the time and had a 3-year-old son. She was left to pick up the pieces of her life. Funari dealt with the grief of losing her daughter by creating the Arizona Cancer Foundation for Children in 2014.
“No one asked how me and my son were doing,” Funari said. “[Cancer] impacts the entire family.”
Source: Season for Sharing grant provides resources to children with cancer
by charmnicole | Jan 6, 2022 | Uncategorized
BALTIMORE, January 4, 2022—Online learning poses additional challenges to children with chronic medical conditions or special education needs, and these patients could benefit from more support from pediatric clinicians to be academically successful, according to a new opinion piece in JAMA Pediatrics released today and co-written by researchers at Kennedy Krieger Institute and Johns Hopkins Medicine.
Clinicians should address school-related challenges or issues like any other medical need in pediatric care, said Lisa Jacobson, PhD, NCSP, ABPP, co-director of Kennedy Krieger’s Center for Innovation and Leadership in Special Education (CILSE) and director of research for the Institute’s department of neuropsychology.
This includes gathering a child’s full health history and details of school performance, as well as noting any signs of school challenges the patient faces. Clinicians can reach out to neuropsychology teams, educators or social workers to help their patients with chronic illnesses keep up academically with their peers.
These recommendations are based on research with pediatric oncology patients, who suffered unique obstacles with online learning in the COVID-19 pandemic; in fact, more than half, or 57 percent, of parents of children with cancer reported difficulties with learning online during this time.
Prior to the pandemic, parents of children with cancer also reported challenges to securing special education services because of several factors, including a lack of familiarity with available resources as well as ways to secure them. But these challenges are not unique to pediatric cancer patients; children with other chronic conditions, including long COVID, or special education needs face the same obstacles, Dr. Jacobson said.
However, these same families often have regular interactions with pediatric specialists throughout their child’s treatment or care. By increasing the awareness of the positive role that pediatric specialists can play in their patients’ education, these clinicians could provide assistance on school-related issues, she said, adding that not doing so could contribute to lifelong negative health impacts.
Source: Children with chronic health conditions, and those with special education needs, should receive more help with online learning
by charmnicole | Jan 6, 2022 | Uncategorized
COLUMBUS, Ga. (WTVM) – Have you noticed the gold fountains in Uptown? They’re gold in honor of Childhood Cancer Awareness Month!
Childhood Cancer Awareness Month is recognized every September by childhood cancer organizations around the world.
With a goal to increase awareness and raise funds for those affected by childhood cancer, the American Childhood Cancer Organization encourages everyone to Go Gold® during September in honor and in memory of kids with cancer!
Source: Uptown fountains go gold for childhood cancer awareness
by charmnicole | Jan 6, 2022 | Uncategorized
Children deserve better: Increase funding of pediatric-cancer research
Bald heads, children laughing, riding bicycles in the hall … these are the images I think of as a day in my life as a pediatric oncology nurse at Seattle Children’s Hospital. These are the moments I have ingrained into my memory when the dark days haunt me. Many of the days are not filled with laughter but rather tears from needle sticks, chemotherapy or bone marrow biopsies. Hard conversations and delivering bad news have become all too normal in my life. I remember holding the hand of a parent when they cried inconsolably after hearing, “Your child has cancer.”
Source: Children deserve better: Increase funding of pediatric-cancer research
by charmnicole | Jan 6, 2022 | Uncategorized
The fifth annual Maggie’s Mile event was held at Sunken Meadow State Park Saturday.
The annual run is devoted to raising awareness for pediatric cancers. It also funds research and the needs of those facing the disease.
The event was held in three competitive runs; one for women, one for men and another for the community.
There was also an option to complete virtually.
Runners need had to pay $35 to participate.
Source: Sunken Meadow State Park hosts annual run to raise funds for pediatric cancer research
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